Posted by: Autism Speaks | September 11, 2009

Online Fundraising Training: Welcome

Welcome to the first of six short, fun videos designed to help you get the most out of your fundraising experience. The series will include short videos on how to build and edit your personal page, send e-mails and much more!

For more information, guides and help, please log-in to your fundraising headquarters.

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Responses

  1. I’m walking on behalf of my son, Cayden, who is almost 5 years old. I’m hoping that his children will not have to deal with this HUGE epidemic. There is a lot more exposure now that 10 or 20 years ago, but I still think that anything having to do with Autism is astronomically expensive and insurance companies need to do a better job of covering these cost! Like most moms, I’m also trying to expose my son by doing things most 3,4 or 5 year olds do like: Chuck E Cheese, parks, anything holiday related, traveling, birthday parties, church, YMCA, etc. These things can be very difficult, especially because most autistic children do not transition well. We still try to do it whether he has a melt-down or not. Most of the time it doesn’t work, but it’s getting better. We will try to walk as a family next year for sure! He has a younger brother and sister that need to know about his needs too and what they can do to help him. We love our son and we know that his future will be a bright and shining as he is to us. Love, Mommy and Daddy Watts

    • To Mommy and Daddy Watts: You are a wonderful and brave family. I know how hard it is to participate in these functions you mention above. I have a almost 5 year old grandson that is autistic and we try too and know how difficult it is especially when you have younger children as well to take care off. Nevertheless, like you said it’s import to continue to expose him to these activities so that he will get better. Good luck and don’t give us. CJ’s Grandma.

    • I agree with you. If I can be insured just because I have brain seizures your
      child should be covered too.
      I am so glad that Medical Technology is not only researching but reviewing many Autism cases & finding out alot of those people have something else not
      Austism. We the public have known for more than thirty years that these individuals are very accute & not just mere dummies but genius that have great
      hearts. How many people do you know that can sit down at a piano & play the
      classics, jazz(the doctors really believe they listen with their ears).
      I know many healthy people that don’t read notes(never wanted to learn or bother with the process) & learned how to play the piano & other instruments by ear(my cousin is one of them).
      Neurologists can be a pain to put up but just discipline your patience.
      My paid off after 29 years of having brain seizures every 6 to e weeks.
      I even learned how to drive. My speech was terrible but I slowly took 3 years
      to finally be able to connect with a group & have a regular/normal conversation
      with another human being.
      Teach patience to your child because in the long run it really pays off.
      Take care & your 5 year old will stay in my daily prayers to just keep those doctors busier than before.

      Susan Ball
      Atlanta, GA

    • Maria, My only granddaughter was diagnosed with autism this past year and I still don’t know where to go or what to do, I am so lost in this, its absolutely heartbreaking, I feel like my hands are bound so tightly that by the time I get all the answers my little Ivy will be lost. She is on a waiting list here and there. Her pediatrician doesn’t know what to do either, the insurance company (Aetna)doesn’t cover enough or the doctors don’t take insurance and they want $6.00 a minute (my last quote) or $300.00 up front for an hour each visit. Ivy lives with me and she is the joy of my life. I want her and all these kids to have a chance at life as I did, I see her meltdowns, her anxiety, her extreme eating patterns, her anger, her hyper attitudes, her tummy problems, her IBS, the constant tantrums and her constant tears. I am consumed my every thought on what to do and how to do it. I will be attending my first Autism Walk in Houston tomorrow Ivy and Mommy will stay home my daughter thinks it best since we dont know what to expect – she gets VERY upset in crowds of more than 5 so here I go! I sure hope that I get the information I need to help her like fiinding out how to find a doctor in houston that can actually help her and me so we can get on the road to a better life and healthier one for her. I will be praying for Cayden as I do for all of God’s little angels affected by Autism and the parents and caretakers who give so much of their lives to help.

      • Sarah, look into a local “Regional Center”. I don’t know where you live, but the East Bay Regional Center (in Northern California) is where I began my journey with my son when he was diagnosed in 2008. (At 2 years old).

        Good luck on your journey with Ivy, and God Bless!

  2. I do not know anyone who has Autism…I am walking for ALL kids with Autism.
    Liliana

  3. I am walking for my sunshine my son Christopher !

  4. I’m walking for my son Cyril who was just diagnosed at 6 years old with autism. He was born extremely prematurely and for a while, no one could know for sure whether he had autism or was simply developmentally delayed. We need answers. We need guidance. We need resources. We need support.

  5. i am walking for my nephew jayden who will be two in june. Anything we can to support you can count on us! I am also walking for my co-workers son Mario who is also autistic.

  6. I walk for my twins Alex and Katie. Alex has autism while his twin 7 year old sister, Katie does not. From an outsiders perspective, they look like perfectly healthy, beautiful children. Alex is taller and stronger than his sister and looks absolutely “normal”. But the fact is, he can’t talk. He can’t brush his own teeth or take a bath by himself. He can’t play football or soccer or make himself a snack when he’s hungry. I change more than 10 of his diapers a day. He can’t even tell me he loves me. But you know what, his sister Katie is a wonderful sister. She’s stepped up to be the bigger, stronger one. She engages Alex every day and helps mommy out around the house when I’m paying special attention to Alex. Both of these kids are special. I walk for both of them. They’ve made such a special difference in my life and those around me. I can only hope and pray that there is a cure one day. We will do whatever we can to help out towards that goal!

    • I can definitely relate, my daughter is five years old and she can not talk or do anything for herself she is completely dependent on me and her teachers. My younger daughter helps me with her so much, it’s like she understand it’s so amazing.I love my daughter so much I hope she will tell me she loves me on day as well. I wish you the best.

  7. I am a Grandma of one & Step-Grandma of a set of twins Angel & Jose. I hate the phrase (step-grandma) because I love them as if they are grandchildren .
    I am walking for Jose, who was diagnosed last year, and I love with all my heart. I wish things could be different for him, but there is no way I can ever understand what he must be going thru. I want to do anything I can to support an effort to find this cure we all pray for. I want him to know that I support him and if he ever needs me for anything, he can count on me.
    There are days he can go without medications, those are days we have actually talked about interesting things, I see he is a loving, caring young man, who enjoys sharing his ideas with you.
    Then there are times he has bad days and needs to be medicated, you don’t even know he is in the same room with you. Those are days he doesn’t want to be bothered by you ( I hate those days)
    I cherish the good days because I can see the sweet person he really is. He smiles, he laughs with you and one day after 8years of being a part of their lives, I got a hug! And he told me he missed me! That day I cried tears of joy and I talked about it for days to anyone who would listen! The 8 years I have been part of their lives, it was my first hug and I loved it.
    (that was a good day)
    I encourage him every chance I get to pursue his passion of becoming an artist, architect, design engineer or video game designer. He has so many great talents that I know whichever he chooses he will be a perfectionists at it because he is so detail oriented and is always coming up with something new.
    I love listening to him talk and see the enthusisiam in his face when he builds something.
    This year I asked if he wanted to help me plant a flower garden in my yard, and now every time he comes over he wants to plant something but I tell him he needs to wait for better weather.
    I have been saving plants & seeds for us to make a whole day of it when he comes over so we can spend time together. I do not know much of his illness, but I do know you need to keep him interested in something and get creative with him.
    I want him to enjoy the garden every year and maybe add new things to it every time he comes to visit. (I can’t wait!)

    I want to end my response with these few words.

    I have no words I can say to take the pain away. I have no miracle I can provide.
    All I have to offer my family
    are my ears to listen when they need to speak,
    my arms to comfort, when they hurt,
    the strength to push them
    when they feel they can’t go on,
    but most of all
    what I can be,
    is the best Grandma of all.

    And it is for My Grandson Jose that I walk.

    • Thank you for the beautiful words at the end. I also have a grandson with autism , so I could relate to your words, and you so clearly stated what I feel my role is. God bless you and your family.

    • Your still a grandma(just forget the step/half-half of what) no matter who you are so, hang in there & just do your best-what you love to do just being around those kids.

      Susan

    • Rosa, thankyou for the heartfelt letter you wrote, you brought me to tears because you spoke the words that I feel also. You my dear are an awesome grama and Jose is so fortunate to have you in his life as are your children. please know that God’s hand is on all of our children, He gives us strength in all of this.

  8. I am walking for my son Zachery….I love you buddy!

  9. I am walking for my 2 Sons Joseph and Anthony. My oldest Joseph has taught me so much. When he was Diagnosed in 2001 they told me he would never speak.. Well he did speak not until he was 4 but he has been fighting his way ever since. He is amazing and I am hopeful that his younger brother Anthnoy who is 2 and was diagnosed with Autism will have his strength and perseverence. Together..they are Brothers Battling Autism…I love you and will fight for everthing you deserve!! Love Mom <3

  10. I am walking for my 5 year old son, Daniel who is living with Autism. We are trying to get him out in the community as much as he can tolerate. He is a runner and does not understand stranger danger. We just returned home from his first ever camping trip. It was an interesting experience. For the most part, I feel it went well but not great. However as long as he gets out and experiences life I hope that he will find himself. All we can ask is for his happiness. Time will tell what the future will hold. We are all just along for the ride.

  11. I walk for my loving beautiful sunshine of my life Ethan. I am so proud of how far he has come. All is possible with patience and love. Hence his favorite song is “all I need is love”.

  12. I’m walking the 1st time for my 4 1/2 yr old son whom was just diagnosied with Autism Spectrum disorder this summer of 2010. He has a older sister that need to know about his needs too and what they can do to help him. He has come very far with his therapy and still has a way to go. With love from friends and family and communtiy support he will continue to thrive.

  13. My daughter and I went to the Walk last year to ‘see’ what goes on. This year we have a team “Isaiah’s Voice” for my grandson who is 3 1/2. We are grateful for Partners in Excellence for the wonderful help they have provided as we’ve watched Isaiah grow so much this past year.

  14. I am walking for you Moms and Dads. Your strength is an inspiration. I wish I could give you so many answers that you are looking for. If I can walk and raise awareness and raise money to help these wonderful doctors and researchers keep on looking for those answers, then I will continue to help do my part for you. The Moms and Dads, and siblings, that dedicate your lives to your children with autism — you are INCREDIBLE AND AMAZING!!!!

  15. I’m walking for the coolest boy I know Tyler. And his amazing Parents Jamie and Dom. You guys are so givining and loving, your strength and dedication to everyone around you could make us rich so figure out how to bottle that stuff will you! Thank you for being such good friends.

  16. Today I walk for my son Marc Anthony who less than a year ago at the age of 10 was diagnosed with Asperger’s which is a form of high function Autism. With that diagnosis I began to understand the struggles that he is going thru growing up. Marc you have been through a numbers of obstacles from the bullying, despairing times, and having to start over at another school but never once complaining why you. As many have seen you as the super brilliant & heartfelt quirky kid that you are, I just want to tell you that your strength and endurance will always been an inspiration to me. Keep pressing on with your love for reading, making homemade science experiments, build Lego city’s, studying Greek mythology, solving complex math equations, telling hilarious jokes, and knowing all things comic book related in detail, these attributes will get you far in life. I love you -Dad.

  17. I am walking for my son Erik who will be 30 yrs. old. He is a miracle child.
    He was nonverbal, flapping his arms etc. He still has odd behaviors
    but I love him with all my heart !!! He’s come a long way. When he was born, nobody
    knew the meaning of the word “autism”. When you have a hidden disability it’s doubly hard on the person. People expect you to act a certain way and if you don’t they will stare!!!

    • Staring is a understatement, I can’t even tell you how many times I have had a melt down myself from the ignorance of some uneducated people. It’s very surprising how so many people do not even know what Autism is or how it affects family and friends.

  18. I am walking for my daughter Jaylyn she is five years old. She was diagnosed at age two, the news changed my life. I am only twenty-three years old fighting for my daughter every way I can. I also have a two year old daughter that loves and supports her sister. She is almost three but she understands that her sister needs extra help and care. it’s ironic she calls her big sister her little sissy, she always looks out for her at such a young age it’s really heart warming. For all the families out there that have a loved one who suffers from autism be patient good things will come. They’re are little angels!


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